Publicaties

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Wat zijn de resultaten van de eHealth toepassingen op Gezondheidsmeter? Kunnen we begrijpen waarom een toepassing soms goed werkt en soms minder goed? Dat is onze maatschappelijke bijdrage aan een duurzaam zorgstelsel. We werken hierin samen met universiteiten en hogescholen, zonder restricties over publicatie van de bevindingen. Heb je een goed idee? Mail ons!

Infometer

De data zijn van de deelnemers. Deelnemers geven specifiek toestemming voor analyses. Die toestemming wordt vooraf gevraagd. Daarna ziet de onafhankelijke stichting Infometer erop toe dat de gegevens anoniem worden aangeleverd voor de analyse en dat de analyse conform de specifieke toestemming is. 

Auteur(s)TitelTijdschriftDatum
E.M.J. van Noort et alOnline Tool for the Assessment of the Burden of COVID-19 in Patients: Development StudyJMIR Formative Research31-03-2021
C.C. Moor et al.Home Monitoring in Patients with Idiopathic Pulmonary Fibrosis: A Randomized Controlled TrialAmerican Journal of Respiratory and Critical Care Medicine23-04-2020
M.S. Wijsenbeek et al.Diurnal variation in forced vital capacity in patients with fibrotic interstitial lung disease using home spirometryEuropean Respiratory Society06-04-2020
Jongen P.J. et al.The Interactive Web-Based Program MSmonitor for Self-Management and Multidisciplinary Care in Persons With Multiple Sclerosis: Quasi-Experimental Study of Short-Term Effects on Patient EmpowermentJournal of Medical Internet Research Vol 22, No 3 (2020): March09-03-2020
M. Wapenaar – de KorverPatient-Reported and Patient-Recorded Outcomes in Interstitial Lung Diseases and Pulmonary Hypertension – Hoofdstuk 6Erasmus University Rotterdam29-10-2019
Hallensleben C. et al.eHealth for people with COPD in the Netherlands: a scoping reviewInternational Journal of Chronic Obstructive Pulmonary Disease Vol. 1426-07-2019
M.S. Wijsenbeek, K. MoorUsing eHealth to monitor idiopathic pulmonary fibrosisResearch OUTREACH (106)08-05-2019
C.C. Moor, Y. Gür-Demirel, M.S. WijsenbeekFeasibility of a Comprehensive Home Monitoring Program for Sarcoidosis.Journal of Personalized Medicine, Volume 9, Issue 205-05-2019
Mareye Voortman et al.Clinical Manifestations of Neurosarcoidosis in the NetherlandsJournal of Neurology and Neuroscience – ISSN 2171-662528-02-2019
A.L. de JongInvloed van empowerment en commitment op het gebruik van activiteitsmeter FitBit Flex 2 in combinatie met de Persoonlijke Gezondheidsomgeving bij chronisch ziekenMasterthesis Erasmus06-2018
C.C. Moor et al.Monitoringprogramma bij idiopathische pulmonale fibroseV&VN Longverpleegkundigen12-2018
A.M. Boels et al.Effectiveness of diabetes self-management education via a smartphone application in insulin treated type 2 diabetes patients. Design of a randomised controlled trial (‘TRIGGER study’)BMC Endocr Disord. 2018 Oct 22;18(1):7422-10-2018
G. de Boer et al.Intrinsic factors influence self-management participation in COPD: effects on self-efficacy.ERJ Open Res28-06-2018
C.C. Moor et al.A home monitoring program including real-time wireless home spirometry in idiopathic pulmonary fibrosis: a pilot study on experiences and barriersRespiratory Research 2018 19:10529-05-2018
C.C. Moor et al.Development and feasibility of an eHealth-tool for Idiopathic Pulmonary FibrosisEuropean Respiratory Journal 20182018
I.A. PeterseHealth: Hoe zorgt zelfmonitoring in de zorg voor een effectievere behandeling?MS Regionaal 2017:311-2017
E.M.J. van Noort et al.Feasibility of online risk-based monitoring by patients: the natalizumab caseECTRIMS_Parijs25-10-2017
Wendy H. Oldenmenger et al.Development and feasibility of a web application to monitor patients’ cancer-related painSpringer10-09-2017
E.M.J. van Noort et al.Selfmanagement by eHealth in asthma and COPD patients: with or without the professionalERS_Milaan10-09-2017
P.J.H. Jongen et al.Adherence to Web-Based Self-Assessments in Long-Term Direct-to-Patient Research: Two-Year Study of Multiple Sclerosis PatientsJ Med Internet Res 2017;19(7)21-07-2017
S. Van der SluysPatiënt en zorgverlener: partners in eHealthPatiëntparticipatie & eHealth Symposium 201711-05-2017
E.M.J. van Noort et al.ZiekteLastmeter COPD via Gezondheidsmeter PGOLongdagen 201711-04-2017
A.J.M. van Wijck et al.Pain, Itch, Quality of Life, and Costs after Herpes ZosterWorld Institute of Pain13-10-2016
G. de Boer et al.Self-efficacy in patients with COPD using an online selfmanagement programERS_Londen07-09-2016
P.J.H. Jongen et al.MSmonitor blijkt zinvolle e-health toepassingMedisch contact 29-3021-07-2016
E.M.J. van Noort et al.Zet in op het PGO! Business model van de toekomst.Poster KWF bijeenkomst27-06-2016
P.J.H. Jongen et al.Persistence and adherence in multiple sclerosis patients starting glatiramer acetate treatment: assessment of relationship with care received from multiple disciplinesPatient Preference and Adherence Volume 2016:1024-05-2016
P.J.H. Jongen et al.The interactive web-based program MSmonitor for self-management and multidisciplinary care in multiple sclerosis: utilization and valuation by patientsPatient Preference and Adherence Volume 2016:1003-03-2016
P.J.H. Jongen et al.The interactive web-based program MSmonitor for self-management and multidisciplinary care in multiple sclerosis: concept, content, and pilot resultsPatient Preference and Adherence Volume 2015:911-12-2015
M.S. Wijsenbeek et al.Implementation of an e-health self-management tool for Idiopathic Pulmonary Fibrosis: a pilot studyPFF Summit 201512/14-11-2015
J.C.C.M. in ’t Veen et al.Adherence to online selfmanagement in patients with COPD or asthma: The role of disease burdenERS 201526/30-09-2015
S. van der Weide et al.eHealth bij mensen met dementie en hun mantelzorgers. Resultaten na 1 jaar.13e Nationaal Gerontologiecongres02-10-2015
W.H. OldenmengerFeasibility of monitoring patients’ cancer-related pain via the internetEFIC 201502/05-09-2015
V. Kruijsen et al.Use of Online Self-Management Diaries in Asthma and COPD: A Qualitative Study of Subjects’ and Professionals’ Perceptions and Behaviors.Respir Care
60(8): 1146-1156
08-2015
P.J.H.Jongen et al.A prospective web-based patient-centredinteractive study of long-term disabilities,disabilities perception and health-relatedquality of life in patients with multiplesclerosis in The Netherlands: the DutchMultiple Sclerosis Study protocolBMJ Neurology 15;12804-08-2015
Frank D. VerbraakVariability in treatment decisions of DMEInvestigative Ophthalmology & Visual Science
Vol. 56, 180. doi
06-2015
Datema M et al.Neurosarcoidosis and paraneurosarcoidosis: new online registration of patients.NTVG 2015;159(0):A83832015
S. van der Weide et al.Aan de slag met E-Health bij mensen met dementie en hun mantelzorgers.Workshop W2.01 Geriatriedagen12-02-2015
T.H. Mennema et al.PGD implementatie, gestart met astma / COPDCAHAG12-01-2015
A.J.M. van WijckPain and quality of life after herpes zoster: web-basedprospective studyEUGMS-Rotterdam17-09-2014
J.C.C.M. in ’t VeenOnline Asthma/COPD self-management diaries: A qualitative study into patient and professional experiences with persistent users and quittersERS-Munich10-09-2014
K. VosMinireportage: Zelfhulp via internet: chronische pijnNefarma06-2014
W. OldenmengerPijn bij oncologische patiënten, klinisch bekeken.Change Pain02-2014
P.J.H. Jongen et al.Integrated Multiple Sclerosis (MS) care and support in the Netherlands: The Multiple Sclerosis Impact Profile (MSIP) as part of an interactive web-based self-management support and integrated care programPan European Stakeholder Colloquium-Brussel23-05-2014
B. Thoonen, K. VosAan de slag met eHealth!Huisartsbeurs Utrecht22-04-2014
P.J.H. Jongen et al.MSmonitor: an interactive web-based tool for self-management and long-term treatment monitoring in multiple sclerosis.ECTRIMS_Kopenhagen04-10-2013
P.J.H. Jongen et al.MSmonitor – An Interactive Web-Based Tool for Self-Management and Care in People with Multiple Sclerosis Available for Mobile DevicesMedicin 2.023-09-2013
P.J.H. Jongen et al.Adherence to monthly online self-assessments for short-term monitoring: a 1-year study in relapsing-remitting multiple sclerosis patients after start of disease modifying treatment.Patient Prefer Adherence09-04-2013
E.M.J. van Noort et al.Zelfmanagement en eHealth: toegepast bij astma en COPDPulmo Actueel
13(1)
02-2013
P. van den BrandeHealth zet ziekenhuis op zijn kopVNUexhibitions06-02-2013
M.A. Oudeman et al.Digitaal dagboek: Cystic FibrosisSymposium “Prevention in C.F.”30-01-2013
P.J.H. Jongen et al.online registry for self-monitoring by people with MS and CISECTRIMS_Lyon12-10-2012
J.C.C.M. In ‘t Veen, T.H. Mennema, E.M.J. van NoortOnline self-management in COPD or asthma: With or without the Health Care Provider as coach?ERS_Vienna2012
P.J.H. JongenDrug adherence and multidisciplinary care in patients with multiple sclerosis: protocol of a prospective, web-based, patient-centred, nation-wide, Dutch cohort study in glatiramer acetate treated patients (CAIR study)BMC Neurol.
11:40
30-03-2011
M. BliekendaalE-dagboek Connect verbetert COPD-zorgMedNet astma-COPD special2011
M.G.A. Roek et al.Web-based guided insulin self-titration in patients with type 2 diabetes: the Di@log study. Design of a cluster randomised controlled trial [TC1316]BMC Family Practise2009
P.J.H. Jongen et al.Optimization of immunomodulating therapy with glatiramer acetate daily 20 mg sc in combination with a patient self-monitoring program in The Netherlands (OPTIVIT): baseline resultsOPTIVIT2006
J.P. Donnelly et al.DiFend: An internet register of invasive pulmonary mycosis using the EORTC/MSG definitions for neutropenic patients and HSCT recipientsICAAC2006